Endometriosis patients call for national registry
Endometriosis patients call for national registry
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Endometriosis patients call for national registry

Chloe Aslett 🕒︎ 2025-10-30

Copyright bbc

Endometriosis patients call for national registry

Jessica Smith, who launched the petition, has had three surgeries since she was diagnosed with endometriosis in her mid-twenties. The 32-year-old said the campaign had come from her "personal frustration" as a patient. She said: "It feels like we're guinea pigs, there's very much just a 'try it and wait and see' approach to our treatment." A spokesperson for the DHSC said: "Endometriosis is a painful and debilitating condition, and women deserve timely diagnosis and care. "This government is determined to improve endometriosis care and this year we've made two new treatments available as well as investing £80m to give GPs faster access to specialist advice." Ms Smith said an endometriosis registry would "perfectly slot into" the government's Women's Health Strategy. "It just makes logical sense to track our treatments, I want the government to take it seriously," she said. " I just want information, we all do. We are so in the dark with this."

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